Apparently I need to update...

After 3 phone calls today from concerned relatives I have decided that I should post on Ivy's status.  Not that I don't love talking to y'all, but I don't have time for 500 phone calls so....

Ivy is doing okay.  I wouldn't say great or normal, but okay.  Years of training and practice sleeping through the night have been completely ruined by 8 days in the hospital.  She wakes up often, and wakes up grumpy.  We had to take Echo out of their room because Ivy's crying woke her up and Echo is too hard to get to go back to sleep.

She still gets grouchy quite often, but also has many more happy moments and even laughs at Echo like crazy a few times a day.

She came home on 1/4 liter of oxygen, so we have our oxygen concentrator going around the clock.  Its loud and annoying, but keeping her oxygen saturations around 93 percent, which is awesome.  Her surgeon wants her to remain on the oxygen for 1 to 2 months.

 She also came home with 2 extra medications, which she hates.  She is still on Enalapril (for blood pressure and heart pumping reasons), aspirin (to keep her blood thin),  and Amoxicillian (for asplenia), but also now has lasix (a diuretic to help release her fluids), and Aldactone (for potassium).  Both the new medications should be short lived, which is good because she gags and cries every time she has to take them.

We have to restrict her activities for SIX WEEKS!  Which is proving to be difficult.  She wants to play on our playground, and jump on the trampoline, ride bikes and go swimming, and none of these are allowed.  She's not even allowed to run.  I guess it doesn't really matter since she's tethered by her oxygen cord anyway, but I think she's starting to get bored watching movies, playing the iPad and coloring.

Eating has been difficult also, but I think she's slowly eating a little more.  She'll claim to be hungry multiple times a day, but when I give her food she barely touches it.  Its hard.

We have decided to stay home and do a whole lot of nothing until after she sees her cardiologist, Dr Womack on the first of August, and gives her the okay to see more people.  I really don't want her getting sick.  I'm going to wait until after her appointment to see my own doctor as well (so don't flip out mom, I'll get there eventually, everything is fine).  It gives us a chance to get re-settled into our house too.  We could all use a weeks worth of peace and quiet!

Anyway, thanks for everything everyone.  We are happy to be home in Boise and just trying to be as normal as possible until she is completely recovered from all of this.  I'll try to be better about updating.